You don't have to face Functional Biliary Disorder or Sphincter of Oddi Dysfunction alone.
The Functional Biliary Disorder Foundation UK is here to make sure you’re not navigating this alone, but we’re only one part of a wider support network. Alongside our community and resources, condition-specific charities understand digestive health, organisations support chronic pain, mental health services address the emotional toll a long-term condition can bring, and practical or financial support can help if this condition affects your work or day-to-day life. Below, we’ve gathered some of the organisations we’d encourage you to explore.
Support from the Foundation
Read Patient Stories
Read real experiences from people living with FBD and SOD.
Community
Connect with others who understand what you're going through.
Get Involved
Help raise awareness of functional biliary disorders.
External Support Organisations
Guts UK
Website: gutscharity.org.uk
Contact: 0300 102 4887 (Mon–Fri, 10am–2pm)
About: The UK’s national charity for the digestive system, with dedicated information on biliary sphincter disorders (the current term replacing Sphincter of Oddi Dysfunction).
GIFT (Gastroparesis & Intestinal Failure Trust)
Website: giftuksupport.org
About: UK-based online support and education for gastroparesis and related gut motility disorders.
Pancreatic Society of Great Britain and Ireland
Website: psgbi.org
About: Patient information covering pancreatitis and the pancreatic side of Sphincter of Oddi Dysfunction.
Pain Concern
Website: painconcern.org.uk
Contact: 0300 123 0789
About: UK charity offering telephone and email support, plus Pain Matters, a quarterly self-management magazine.
Action on Pain
Website: action-on-pain.co.uk
About: UK-based support and advice for people living with chronic pain.
Mind
Website: mind.org.uk
About: Leading mental health charity for England and Wales, offering local services and information.
SANE (SANEline)
Website: sane.org.uk
Contact: 0300 304 7000, daily 4:30pm–10:30pm
About: UK charity offering emotional support for anyone affected by mental illness, including carers and family.
Turn2us
Website: turn2us.org.uk
About: UK charity offering a benefits calculator and grants search for people affected by illness.
Citizens Advice
Website: citizensadvice.org.uk
About: Free, independent guidance on claiming Personal Independence Payment (PIP), available regardless of employment status or savings.