Support and Resources
- Total Raised.$25000
Support and Resources
You don't have to face this alone.
The Functional Biliary Disorder Foundation UK is here to make sure you are not navigating Functional Biliary Disorder (FBD) or Sphincter of Oddi Dysfunction (SOD) alone, but we are only one part of a wider support network.
Alongside our community and resources, condition specific charities understand digestive health, organisations support chronic pain, mental health services address the emotional toll a long term condition can bring, and practical or financial support can help if this condition affects your work or day to day life. Below, we have gathered some of the organisations we would encourage you to explore.
Important: If you have severe or worsening abdominal pain, or symptoms like vomiting blood, call 999 or go to A&E. If you are unsure whether you need urgent care, call NHS 111.
Support from the Foundation
Ways to connect with us and with others who understand what you are going through.
Read Patient Stories
Read real experiences from people living with FBD and SOD.
Community
Connect with others who understand what you're going through.
Get Involved
Help raise awareness of functional biliary disorders.
External Support Organisations
Trusted UK organisations offering specialist information, support and advice.
Guts UK
Website: gutscharity.org.uk
Contact: 0300 102 4887 (Mon to Fri, 10am to 2pm)
About: The UK’s national charity for the digestive system, with dedicated information on biliary sphincter disorders (the current term replacing Sphincter of Oddi Dysfunction).
GIFT (Gastroparesis & Intestinal Failure Trust)
Website: giftuksupport.org
About: UK based online support and education for gastroparesis and related gut motility disorders.
Pancreatic Society of Great Britain and Ireland
Website: psgbi.org
About: Patient information covering pancreatitis and the pancreatic side of Sphincter of Oddi Dysfunction.
Pain Concern
Website: painconcern.org.uk
Contact: 0300 123 0789
About: UK charity offering telephone and email support, plus Pain Matters, a quarterly self management magazine.
Action on Pain
Website: action-on-pain.co.uk
About: UK based support and advice for people living with chronic pain.
Mind
Website: mind.org.uk
About: Leading mental health charity for England and Wales, offering local services and information.
SANE (SANEline)
Website: sane.org.uk
Contact: 0300 304 7000, daily 4:30pm to 10:30pm
About: UK charity offering emotional support for anyone affected by mental illness, including carers and family.
Turn2us
Website: turn2us.org.uk
About: UK charity offering a benefits calculator and grants search for people affected by illness.
Citizens Advice
Website: citizensadvice.org.uk
About: Free, independent guidance on claiming Personal Independence Payment (PIP), available regardless of employment status or savings.